Relations,
Hello and Good Evening,
Was able to connect with He-Who's-From-The-South at exactly 1445 this afternoon. He is my doctors assistant over at the clinic and we spoke of and about the episodes of no sleep due to the sounds, noises, nausea and dizziness. This past episode was about the fifth time of no sleep since June...
...per, He-Who-Touched-My-Brain, the latest and newest and most improved symptom - is exactly that. A symptom of Meniere's Disease and the loss of hearing. I have been informed we are running maximum on the medications presently. We have tried all medications available to use against Meniere's Disease symptoms. Some with negative results and some totally ineffective. As if taking empty capsules. Presently and across the board, medicinally speaking there is absolutely "nothing" more we can do.
Per previous discussions with Doctor there will not be any more crack the skull surgeries. If something were to require He-Who-Touched-My-Brain to crack the skull again, we run the risks of total loss of hearing and or total loss of balance and or both. I don't see this in the palm of my right hand.This right ear is my relief ear, my DL, as in Designated Listener. Yes, I have had a decline of word recognition and loss of hearing, but the actual structure and mechanisms of the right ear remain intact. When the time comes - should the time come when it is necessary to apply a Cochlear Implant, that would be my last operation. Until then, nix the surgery.
I've been asked to keep my chin up and think positively...
...yes.
That's much easier said than done. Who in the hell likes to have nausea so severe one/I can feel the vomit waiting behind that latch in my throat. As in I can feel my vomit touching that damned trap door in my beautiful throat. This is better than Bulimia, you know. If not, then let me share it is better for me. One who has had Bulimia before - because I don't have to put my bird finger down my throat! All I have to do is bend over the commode or out of doors and Meniere's does the rest. There was projectile vomit this evening, so true. Tonight there was productive nausea.
The dizziness is foul. The coordination is Gimp status...
...the noises and sounds are plain fucking maddening AND I am now with the knowledge that we are running on maximum medication. I don't want damned new medication to begin with! I very and quite simply wish to have these symptoms of Meniere's dealt with more aggressively. Work with me - talk with me. Please, He-Who-Touched-My-Brain, do not say there is nothing more we can do.
Doctor, please, let's talk.
Enough said. Seen.
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