Monday, December 8, 2014
When Stuff Like That Happens...
Kindred, 08 December 2014
It's true, you know?
That when Folks talk to me with negativity or harsh energy in their voice.
There's a part of me, I know, that wants me to retreat from these Folks.
Darn near constantly, in my face with their faces.
Gawking at the hollow part of my scalp where my implant sticks out.
Too much like a damned bad recurring dream -
I often find myself in the "position that makes me feel so damned
- Un-pretty". (Lyric By TLC) (God Bless TLC!!)
I sometime don't have much of an issue when Folks take a look.
It's the fools who go out of their way to gawk, or to be rude.
In person and on the telephone too.
Shit, I've got to get out more often! Sensitive fellow, I reckon.
Yes, I understand there remain issues on this topic. So yes,
all of this and that really does still make me feel un-pretty.
Yes, Master?
What If This Is The Way You Were Treated As A Patient?
Hello Reader's and Guests,
I simply wish to ask a quick question and share a scenario I had minutes ago with a company that is supposed to be the middle folks in assisting me with getting my newest BAHA, the BAHA 5. The newest and latest and most bad ass implant yet, the Bone Anchored Hearing Aid. It is sad enough, and bad enough that my team failed to inform me of a BAHA 4. Or the BAHA 5, until I mentioned it. I empathize and truly understand busy business is a busy business, but really?
Every time I respond to the telephone, or speak business on our house telephone, I let the caller know they are speaking with an individual who is Single Side Deaf and Hard of Hearing.
To get straight to the point and purpose of this communique is to share what really happened to me just minutes ago when I called into this medical business.
A business that is to aid and assist those of us who are calling in search of some help. A business for Folks to get their necessary replacements of processors, hearing aids, and I would suspect other types of Medical Equipment.
This is what I experienced just a few minutes ago, I sit here sweating and embarrassed because the young-not-so-professional who answered telephone actually turned against me when I informed her of the purpose of my call. I share with purpose that this young lady was chock full of discourtesies, even raising her voice sarcastically, as if this was all a joke. As if I were just another task. When I reminded her of my being Deaf and HH, her temper worsened with every exchange of words and repeats. Please. WTF was this?
Then when I spoke with the person who would be my representative with this middle party, she tended to down play and almost justify She The Answerer of Telephones, faxes, and like that.
I await a return call from my audiologist and my audiologist secretary. I would rather not deal with a company that takes care patients in such a way. It's best I calm myself down a spell.
So I ask, 'what if you were treated this way as a patient? A potential customer?
I simply wish to ask a quick question and share a scenario I had minutes ago with a company that is supposed to be the middle folks in assisting me with getting my newest BAHA, the BAHA 5. The newest and latest and most bad ass implant yet, the Bone Anchored Hearing Aid. It is sad enough, and bad enough that my team failed to inform me of a BAHA 4. Or the BAHA 5, until I mentioned it. I empathize and truly understand busy business is a busy business, but really?
Every time I respond to the telephone, or speak business on our house telephone, I let the caller know they are speaking with an individual who is Single Side Deaf and Hard of Hearing.
To get straight to the point and purpose of this communique is to share what really happened to me just minutes ago when I called into this medical business.
A business that is to aid and assist those of us who are calling in search of some help. A business for Folks to get their necessary replacements of processors, hearing aids, and I would suspect other types of Medical Equipment.
This is what I experienced just a few minutes ago, I sit here sweating and embarrassed because the young-not-so-professional who answered telephone actually turned against me when I informed her of the purpose of my call. I share with purpose that this young lady was chock full of discourtesies, even raising her voice sarcastically, as if this was all a joke. As if I were just another task. When I reminded her of my being Deaf and HH, her temper worsened with every exchange of words and repeats. Please. WTF was this?
Then when I spoke with the person who would be my representative with this middle party, she tended to down play and almost justify She The Answerer of Telephones, faxes, and like that.
I await a return call from my audiologist and my audiologist secretary. I would rather not deal with a company that takes care patients in such a way. It's best I calm myself down a spell.
So I ask, 'what if you were treated this way as a patient? A potential customer?
Friday, December 5, 2014
A Brief Chat About Meniere's, Nuerology, and Respiratory
Greetings,
This evening, or this morning really, has me in a place to chat and catch up a wee bit. I have decided the written journal shall ever be by my bed with pen in spine, and lately. I have had a strong yearning to be reunited with my blog, Meniere's Disease, Mario's Path. A creation of something that is still real to me. I have had some very difficult times and feel as if I have a right good grip of this bulls balls and I plan to begin 2015 off with a bang! A great report from me to you that I've been working on silently, never once offering even a hint of what I've been working on.
Well friends here I am years later and I find myself continuing to have to deal with not only Meniere's Disease and it's directory of symptoms, from an assorted skull full, pained face with and from facial spasms. Oh, and dear readers, I share from my mind to yours that there are plans in place that will aid me in getting to my next level of recovery. There are still several places on my skull and in my scalp that continue to pain, hurt, harm, and create such unrest I have no choice but to swallow my medicine and wait for the approaching sleep that tends to last but an hour or so with my new medicinal formula. I share, it is my belief as of this week, that I can visualize just how we're going to combat hyper-somnia which is one of the circumstances of Meniere's Disease, two implants, and a few procedures, blah, blah, blah...
...nausea is with me pretty much twenty four hours a day and seven days a week, etc., etc. Just like to night! As I sit here sweating and dizziness that is from a roller coaster dizzy. It has become such a routine that I simply don't even report this or other symptoms. I often feel as if I trouble doctor and his staff, many members of a group of professionals that have really rooted me on - time after time. The associates of He-Who-Touched-My-Brain's, staff are professional while loving me as if I were their Kin Folk. How can I not love a group of my team that so very often presents itself with total respect with every call and visit.
My Neurological and Neurological Pain Doctor's have become closer to me. We have work in hand with my chronic pain created by some of such in notes above. We have had several surgical procedures concentrating on my Cervical Spine, Facial Spasms, neck and shoulder pain that can often time present a situation when I follow orders from my Medical Staff who are also Team Mates in this War that has dozens and dozens of battles. BOTOX, continues to be the medication of choice by my right good professor to tackle spiders, door bells of pain. And yes, change has been set on engage.
We as a Team have assisted me in gaining a better control of my Asthma! This disgusting disease that on two occasions took me to the brink of not breathing, shared with me that I am a believer in the honest to God fact that Emergency Dept., staff have saved my life on three occasions, another was with pneumonia.
Good day there was another time when I permitted myself to go as far as emergency. One of those full fledged - get him to the OR scene from T.V. shows. Just it wasn't a show - it was me with my sinus's seriously infected. Really though, I've had a stretch of maybe one and half years since last hospital stay for respiratory. Oh yes, I feel good that with this particular disease, a tight control of which, is soon to be within grasp. Thank You Holy Father!
On this thankful note, I would wish to close with acknowledging all who have been a member of my team at any and all levels from which ever hospital. I surly wish to thank all of my Kin Folk who have assisted me with 'Johnny-on-the-Spot', requests for a ride to the lodge please? Very often, the ride is there for and with me and the Boys. I've had other sisters transport me with gladness, friends too, and of course my Little Blue Buses. What a privilege it is indeed and I am forever thankful for my friends here who stop by to read and check in on me. Kindred, I bid you a good night & peace.
This evening, or this morning really, has me in a place to chat and catch up a wee bit. I have decided the written journal shall ever be by my bed with pen in spine, and lately. I have had a strong yearning to be reunited with my blog, Meniere's Disease, Mario's Path. A creation of something that is still real to me. I have had some very difficult times and feel as if I have a right good grip of this bulls balls and I plan to begin 2015 off with a bang! A great report from me to you that I've been working on silently, never once offering even a hint of what I've been working on.
Well friends here I am years later and I find myself continuing to have to deal with not only Meniere's Disease and it's directory of symptoms, from an assorted skull full, pained face with and from facial spasms. Oh, and dear readers, I share from my mind to yours that there are plans in place that will aid me in getting to my next level of recovery. There are still several places on my skull and in my scalp that continue to pain, hurt, harm, and create such unrest I have no choice but to swallow my medicine and wait for the approaching sleep that tends to last but an hour or so with my new medicinal formula. I share, it is my belief as of this week, that I can visualize just how we're going to combat hyper-somnia which is one of the circumstances of Meniere's Disease, two implants, and a few procedures, blah, blah, blah...
...nausea is with me pretty much twenty four hours a day and seven days a week, etc., etc. Just like to night! As I sit here sweating and dizziness that is from a roller coaster dizzy. It has become such a routine that I simply don't even report this or other symptoms. I often feel as if I trouble doctor and his staff, many members of a group of professionals that have really rooted me on - time after time. The associates of He-Who-Touched-My-Brain's, staff are professional while loving me as if I were their Kin Folk. How can I not love a group of my team that so very often presents itself with total respect with every call and visit.
My Neurological and Neurological Pain Doctor's have become closer to me. We have work in hand with my chronic pain created by some of such in notes above. We have had several surgical procedures concentrating on my Cervical Spine, Facial Spasms, neck and shoulder pain that can often time present a situation when I follow orders from my Medical Staff who are also Team Mates in this War that has dozens and dozens of battles. BOTOX, continues to be the medication of choice by my right good professor to tackle spiders, door bells of pain. And yes, change has been set on engage.
We as a Team have assisted me in gaining a better control of my Asthma! This disgusting disease that on two occasions took me to the brink of not breathing, shared with me that I am a believer in the honest to God fact that Emergency Dept., staff have saved my life on three occasions, another was with pneumonia.
Good day there was another time when I permitted myself to go as far as emergency. One of those full fledged - get him to the OR scene from T.V. shows. Just it wasn't a show - it was me with my sinus's seriously infected. Really though, I've had a stretch of maybe one and half years since last hospital stay for respiratory. Oh yes, I feel good that with this particular disease, a tight control of which, is soon to be within grasp. Thank You Holy Father!
On this thankful note, I would wish to close with acknowledging all who have been a member of my team at any and all levels from which ever hospital. I surly wish to thank all of my Kin Folk who have assisted me with 'Johnny-on-the-Spot', requests for a ride to the lodge please? Very often, the ride is there for and with me and the Boys. I've had other sisters transport me with gladness, friends too, and of course my Little Blue Buses. What a privilege it is indeed and I am forever thankful for my friends here who stop by to read and check in on me. Kindred, I bid you a good night & peace.
Thursday, December 4, 2014
The Sounds Blaring Between My Ears
Please.
My Reader's, my Kin Folk and My Spirit Kin,
There has been such a block of my gathering thoughts and words to tip tap on here. I mean, I have never tried to not write, or jot down thoughts or utterance's. I speak and move along, really, at least or unless I have had such tough times getting on here. I mean, this spot where I sit is no longer comfortable for me to relax and write or talk and chat. It's really a shame, should anything ever happen again, I'm going to talk more than I have. But. No, the tapes keep playing in my skull...
...and replaying. I do my business to forgive. There are times when shit is done. Some times there are times when times get uncomfortable it is to be near. Even still. I have felt the fear and the vision in my eye balls that I wish I could have an eye doctor laser my eye orbs - while I'm wishing and I'm hoping poop won't happen.
There are things happening and life continues. I follow all of my doctor's orders. To the pill. It's my business but sometimes I feel totally out of place and forget a dose, this is when I get all anxious and hyper and begins symptoms of several diseases hit me hard and I can not point to which is which, but I know, I am obligated to do the right stuff, the right things to have me be a healthier person and begin to deal with the bad issues now. Just make it so and then there is no more.
I am thinking the new anti-depressant is beginning to work in conjunction of all the other tabs, pills and injections I may have to indulge myself with. I'm not prepared to share the name of either or medications I take at this time. Please understand, since I was last here much has gone on. Injections continue to be used with the hopes, as a Team, we'll beat these Neuro/Cervical Spine Pain issues.
The sounds blaring between my ears. My three ears; my Left Deaf Ear is washed daily without fail. Behind my Deaf Left Ear, I have a BAHA Implant and abutment. I also am blessed to have my BAHA 3. I am informed I am qualified to have my older hearing processor replaced by the BAHA 5. Such a huge bonus because we get to keep both processors! I love the idea of have two and my hearing aid for my Right Hard of Hearing Ear. All three are loved and washed daily. Dear Readers, Guest, Kin Folk, and Spirit Kin, I have never stopped loving my blog - I seriously admit that I was blocked by something in my skull. I say soon, I'll be back. Peace, and Love To One and All!!
My Reader's, my Kin Folk and My Spirit Kin,
There has been such a block of my gathering thoughts and words to tip tap on here. I mean, I have never tried to not write, or jot down thoughts or utterance's. I speak and move along, really, at least or unless I have had such tough times getting on here. I mean, this spot where I sit is no longer comfortable for me to relax and write or talk and chat. It's really a shame, should anything ever happen again, I'm going to talk more than I have. But. No, the tapes keep playing in my skull...
...and replaying. I do my business to forgive. There are times when shit is done. Some times there are times when times get uncomfortable it is to be near. Even still. I have felt the fear and the vision in my eye balls that I wish I could have an eye doctor laser my eye orbs - while I'm wishing and I'm hoping poop won't happen.
There are things happening and life continues. I follow all of my doctor's orders. To the pill. It's my business but sometimes I feel totally out of place and forget a dose, this is when I get all anxious and hyper and begins symptoms of several diseases hit me hard and I can not point to which is which, but I know, I am obligated to do the right stuff, the right things to have me be a healthier person and begin to deal with the bad issues now. Just make it so and then there is no more.
I am thinking the new anti-depressant is beginning to work in conjunction of all the other tabs, pills and injections I may have to indulge myself with. I'm not prepared to share the name of either or medications I take at this time. Please understand, since I was last here much has gone on. Injections continue to be used with the hopes, as a Team, we'll beat these Neuro/Cervical Spine Pain issues.
The sounds blaring between my ears. My three ears; my Left Deaf Ear is washed daily without fail. Behind my Deaf Left Ear, I have a BAHA Implant and abutment. I also am blessed to have my BAHA 3. I am informed I am qualified to have my older hearing processor replaced by the BAHA 5. Such a huge bonus because we get to keep both processors! I love the idea of have two and my hearing aid for my Right Hard of Hearing Ear. All three are loved and washed daily. Dear Readers, Guest, Kin Folk, and Spirit Kin, I have never stopped loving my blog - I seriously admit that I was blocked by something in my skull. I say soon, I'll be back. Peace, and Love To One and All!!
Subscribe to:
Posts (Atom)