The going's on of a fellow with Meniere's Disease, who is Single Side Deaf, Hard of Hearing in my right-good-bad-ear, amongst other such and what nots...plus bonus info on the vertigo attacks, and all that comes with this disease, Meniere's. Greetings and peace to you. My name is Mario. I have journaled for nearly twenty years on pen and paper, writing lefty. It's time to spread my wings a piece...take flight...peace...
Thursday, January 10, 2013
(A Meniere's Disease Sound Symptom) Tim Bryson Driving out of River Bryson's Airboat Tours
Kindred,
NOTE: This is not my video. I have borrowed it simply to share this sound to all Kindred.
This is one of the sounds and noises that I capture in my ears and between them when Meniere's strikes. There are not any hints, indications or symptoms of the onset of these Airboat sounds and noises. This is perhaps one of the biggest frustrations and dislikes for me. These sounds tend to be so very loud and linger for hours and hours on end. When the Airboat sounds visit I have tried to play music on my stereo out loud with poor results. When the Airboat happens, I've tried to move about and be some-what more active than prior to the sounds coming...
...take a listen. Turn the volume up and listen. Just for a minute - one minute while you read...
...you see, when sounds and noises "such" as Airboats happen my attention is whacked-and-facked and I can become rather agitated and or anxious. I break out into sweats, have difficulty breathing and not concentrating too clearly. There have been many times of frantic anxiety, which to me and my knowledge of group therapy's and peer counsellings, is very damned close to an all-out panic attack. I have had such attacks. I know what it is to feel like this. There has not been one event when I was able to disengage from this sound. I admit that I have, as ordered, taken my evening medication to aid and assist me - not the sound or noise - but me, the person in this skin. These loud sounds scare me really something awful sometimes. Nightmare's with my eye's and one deaf ear wide open! Sometimes the best thing for me to do is to find one of my Safe Places and just sit or lay down. Reading is beyond difficult with the distractions of this sound and noise. I have tried that as a away to disengage with negative results.
When all of these sounds, horrific noises and voices first began to happen a few years ago, He-Who-Touched-My-Brain, called them an anomaly. My therapist Sir Dude, termed them audio hallucinations. Both are correct - but do not know what it is I try to describe when I share the sounds and noises that visit the space between my two gorgeous ears and one implant.
The first couple times the sound of the Airboat sound came up, I contemplated it was because we live approximately seventy-five yards from a very deep channel. Yes, I went out to see if I could in fact really hear the Airboat better. I aways perceived these sounds came from the North of our property and I suspected it was the Department Of The Interior navigating an inspection of some sort or spraying the of the DDT into the beautiful and huge channel for mosquito control...
...but, you see, there never was any Airboat's out back...
...it took me one time to figure that the sounds of the Airboats were not coming from the channel, but my Kindred, from within one ear - if not both - which is the evilest of evil when it is I must listen to the same sound time and time again. In both ears. For hours on in. This is called bi-lateral Meniere's Disease. It is also a dreadful form of self torture, self abuse.
Kinfolk, when these sounds and noises visit me, the sounds and noises of what I perceive to be an industrial sized Airboat out on the channel are not. THE SOUNDS, ARE LIKE IT "THE AIRBOAT" IS IN MY BACK YARD! This damned sound, sounds like it is right next to my damned bedroom window. I mean? And yes, that DAMNED THING IS LOUD!
Yes, I know it's my disease and my problem. That is why I have such an extraordinary team assembled to aid, assist and guide me through the process's to get me to the next level. And oh yes, this team works and plays very well together. I am comfortable in stating we are functioning on my beliefs of the entire Team being on the "Same Page". For me, this is paramount...
...an UNCONDITIONAL.
I SHARE THIS WITH KINDRED WHO HAVE THE SAME DISEASE! I WANT KINDRED TO KNOW THERE ARE MORE OF US OUT HERE! WE ARE NOT ALONE! AS HUMAN SPIRIT'S AND CITIZENS OF EARTH MOTHER WE MUST JOIN FORCES TO ENSURE THAT AS PATIENTS TO OUR DOCTORS, OR CLIENTS TO OUR THERAPIST, WE DESERVE A VERY STRONG AND PRO-ACTIVE TEAM.
DO NOT SUFFER I SAY - DO NOT SUFFER!
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