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Monday, December 8, 2014

What If This Is The Way You Were Treated As A Patient?

Hello Reader's and Guests,

I simply wish to ask a quick question and share a scenario I had minutes ago with a company that is supposed to be the middle folks in assisting me with getting my newest BAHA, the BAHA 5. The newest and latest and most bad ass implant yet, the Bone Anchored Hearing Aid. It is sad enough, and bad enough that my team failed to inform me of a BAHA 4. Or the BAHA 5, until I mentioned it. I empathize and truly understand busy business is a busy business, but really?

Every time I respond to the telephone, or speak business on our house telephone, I let the caller know they are speaking with an individual who is Single Side Deaf and Hard of Hearing.

To get straight to the point and purpose of this communique is to share what really happened to me just minutes ago when I called into this medical business.

A business that is to aid and assist those of us who are calling in search of some help. A business for Folks to get their necessary replacements of processors, hearing aids, and I would suspect other types of Medical Equipment.

This is what I experienced just a few minutes ago, I sit here sweating and embarrassed because the young-not-so-professional who answered telephone actually turned against me when I informed her of the purpose of my call. I share with purpose that this young lady was chock full of discourtesies, even raising her voice sarcastically, as if this was all a joke. As if I were just another task. When I reminded her of my being Deaf and HH, her temper worsened with every exchange of words and repeats. Please. WTF was this?

Then when I spoke with the person who would be my representative with this middle party, she tended to down play and almost justify She The Answerer of Telephones, faxes, and like that.

I await a return call from my audiologist and my audiologist secretary. I would rather not deal with a company that takes care patients in such a way. It's best I calm myself down a spell.

So I ask, 'what if you were treated this way as a patient? A potential customer?

Friday, December 5, 2014

A Brief Chat About Meniere's, Nuerology, and Respiratory

Greetings,                                                                                                

This evening, or this morning really,  has me in a place to chat and catch up a wee bit. I have decided the written journal shall ever be by my bed with pen in spine, and lately. I have had a strong yearning to be reunited with my blog, Meniere's Disease, Mario's Path. A creation of something that is still real to me. I have had some very difficult times and feel as if I have a right good grip of this bulls balls and I plan to begin 2015 off with a bang! A great report from me to you that I've been working on silently, never once offering even a hint of what I've been working on.

Well friends here I am years later and I find myself continuing to have to deal with not only Meniere's Disease and it's directory of symptoms, from an assorted skull full, pained face with and from facial spasms. Oh, and dear readers, I share from my mind to yours that there are plans in place that will aid me in getting to my next level of recovery. There are still several places on my skull and in my scalp that continue to pain, hurt, harm, and create such unrest I have no choice but to swallow my medicine and wait for the approaching sleep that tends to last but an hour or so with my new medicinal formula. I share, it is my belief as of this week, that I can visualize just how we're going to combat hyper-somnia which is one of the circumstances of Meniere's Disease, two implants, and a few procedures, blah, blah, blah...

...nausea is with me pretty much twenty four hours a day and seven days a week, etc., etc. Just like to night! As I sit here sweating and dizziness that is from a roller coaster dizzy. It has become such a routine that I simply don't even report this or other symptoms. I often feel as if I trouble doctor and his staff, many members of a group of professionals that have really rooted me on - time after time. The associates of He-Who-Touched-My-Brain's, staff are professional while loving me as if I were their Kin Folk. How can I not love a group of my team that so very often presents itself with total respect with every call and visit.

My Neurological and Neurological Pain Doctor's have become closer to me. We have work in hand with my chronic pain created by some of such in notes above. We have had several surgical procedures concentrating on my Cervical Spine, Facial Spasms, neck and shoulder pain that can often time present a situation when I follow orders from my Medical Staff who are also Team Mates in this War that has dozens and dozens of battles. BOTOX, continues to be the medication of choice by my right good professor to tackle spiders, door bells of pain. And yes, change has been set on engage.

We as a Team have assisted me in gaining a better control of my Asthma! This disgusting disease that on two occasions took me to the brink of not breathing, shared with me that I am a believer in the honest to God fact that Emergency Dept., staff have saved my life on three occasions, another was with pneumonia.

Good day there was another time when I permitted myself to go as far as emergency. One of those full fledged - get him to the OR scene from T.V. shows. Just it wasn't a show - it was me with my sinus's seriously infected. Really though, I've had a stretch of maybe one and half years since last hospital stay for respiratory. Oh yes, I feel good that with this particular disease, a tight control of which, is soon to be within grasp. Thank You Holy Father!

On this thankful note, I would wish to close with acknowledging all who have been a member of my team at any and all levels from which ever hospital. I surly wish to thank all of my Kin Folk who have assisted me with 'Johnny-on-the-Spot', requests for a ride to the lodge please? Very often, the ride is there for and with me and the Boys. I've had other sisters transport me with gladness, friends too, and of course my Little Blue Buses. What a privilege it is indeed and I am forever thankful for my friends here who stop by to read and check in on me.   Kindred, I bid you a good night & peace.

Thursday, December 4, 2014

The Sounds Blaring Between My Ears

Please.

My Reader's, my Kin Folk and My Spirit Kin,

There has been such a block of my gathering thoughts and words to tip tap on here. I mean, I have never tried to not write, or jot down thoughts or utterance's. I speak and move along, really, at least or unless I have had such tough times getting on here. I mean, this spot where I sit is no longer comfortable for me to relax and write or talk and chat. It's really a shame, should anything ever happen again, I'm going to talk more than I have. But. No, the tapes keep playing in my skull...

...and replaying. I do my business to forgive. There are times when shit is done. Some times there are times when times get uncomfortable it is to be near. Even still. I have felt the fear and the vision in my eye balls that I wish I could have an eye doctor laser my eye orbs - while I'm wishing and I'm hoping poop won't happen.

There are things happening and life continues. I follow all of my doctor's orders. To the pill. It's my business but sometimes I feel totally out of place and forget a dose, this is when I get all anxious and hyper and begins symptoms of several diseases hit me hard and I can not point to which is which, but I know, I am obligated to do the right stuff, the right things to have me be a healthier person and begin to deal with the bad issues now. Just make it so and then there is no more.

I am thinking the new anti-depressant is beginning to work in conjunction of all the other tabs, pills and injections I may have to indulge myself with. I'm not prepared to share the name of either or medications I take at this time. Please understand, since I was last here much has gone on. Injections continue to be used with the hopes, as a Team, we'll beat these Neuro/Cervical Spine Pain issues.

The sounds blaring between my ears. My three ears; my Left Deaf Ear is washed daily without fail. Behind my Deaf Left Ear, I have a BAHA Implant and abutment. I also am blessed to have my BAHA 3. I am informed I am qualified to have my older hearing processor replaced by the BAHA 5. Such a huge bonus because we get to keep both processors! I love the idea of have two and my hearing aid for my Right Hard of Hearing Ear. All three are loved and washed daily. Dear Readers, Guest, Kin Folk, and Spirit Kin, I have never stopped loving my blog - I seriously admit that I was blocked by something in my skull. I say soon, I'll be back. Peace, and Love To One and All!!

Tuesday, September 16, 2014

Soon Comes ...."35,500"! Guests have visited! Thank You All, From My Core To Yours.

Greetings To All Guests, Kindred, and Kin Folk,

Tonight's communique includes some numbers to share with my friends, followers, and Family who do check it in on me every once in a bit. I know this, and really, all-in-all, my Family has always been one with such dynamics, the drama, the betrayals, and lies. I am in no way a judge, but I bet I can share my thoughts rather nicely, if not almost plainly. With others I connect with, by telephone, correspondence and them I speak with regularly, via tele-type! Oh, yes-yes. I thank each and every person who has stopped by for just a second to check in on me! You Know them, yes? There have been so many family, friends, BFF's!!, and my dearest Fellow Survivors.  Who ever has followed me, knows I am a believer In boundaries. No, I mean! I am honoured and feel as if I am unworthy to have Folks call upon me. I taught my baby sister's where ever a learning opportunity rose. My sweet dear baby Sister Up North-Down-South-in-Georgia who I love something crazy up on me. Some Folk call on the telephone, my sweetest, Wife here has had herds of baby cows when she hears that I've spoken with friend's in England. I love and thank that some of my friends, took just a spell to connect. Thank you, and I am beginning use Face Book as a way to connect and keep in touch with Folks from long ago. Such love. Every once in a while I'll get a vibration in the brain before the telephone go off.  Or I'll get the fancy to jump here in my safe place and tip-tap for a bit. On my text's, which are things, goofy at times, but! I try to battle and attempt to silently go absolutely by the Book on these Chronic and Silent Disease!

Tonight, I'll maintain good, love, and energy to express my thanks and gratitude for all of Great Spirit's Guiding Forces who have led me from one awesome team to another - out here doing what I must to beat this horrid body pain that is some of the worst and most shitty pain to carry day and every day, in my scalp and skull, my neck on three sides, Left Side, Right Side and the back of my spine. As in I know what my C-Spine feels like - I know what it feels like to have a fabulous surgeon with needle-in-spine, and him and I conversing only when absolutely necessary. Very seriously like too much medicine, or was it too much force, too much force - but My-Doctor, did what he had too and he did it well. I trusted him and the Super Team we have in Clinic and dare I say, I just had the best Team attend to a surgical procedure or an all out Operation, 'both' of my special doctors works here with their own Super Clinics!

Per this most recent surgical procedure the affects, It seemed for sure that there was a three or four day span when I felt so awesome! I wanted to scream! I cried! I had awesome business affairs to coordinate and each came through. Since Saturday, maybe Friday, 'Brain listen to right at this moment! Goodness, I say there were a few days the procedure on Right Side of Spine, will require more injections. More surgical procedure. My Sweet Great Spirit, I honestly believed this was the cure all shot for my right side, Yes, it worked well for three days. Maybe.

This past year has been one hell of a wing-dingy for me. My wife and I, our financial affairs and scratching our ways back to a Living Thing pertaining to my health and we not knowing where is this taking We? My relationships with my daughters has had some dynamic change. I am eager to connect and communicate with my eldest daughter! But there is a wall that only she can breach. So too much time has quickly past right on by me, snap my fingers a couple of times. There it is! I'm somewhere else, my innards are constantly at battle with one and another. I would love to spend more time with my youngest too. My Baby. Guuurls, I mean, for bleeding Pete's sake, maybe we do Clearwater or Tarpon Springs to visit with two right good people at their awesome new store!! I've got a couple of ideas for my Buds, figure I'll chat when were in each others company. Yes, true.

Here's a set of two, I thought I could share and express my loved and true thanks and appreciation for so many Kin Folk who do and or have followed me. When I speak of Meniere's Disease, my Guests come over to take a read and check see what Mario's Path is talking about.

Life, the strive for life and a better tomorrow is what my life has been. Take care of other businesses while at the same time do the same, operate a business within the family. I won't stop and I don't stop because shit happens and then the security lights out side were replaced to stir away the dog sized Kitty Cats that roam here by the preserve out back. We were right particular about that mattress real well. I get attached to my stuff, dig? Makes me happy to know that we had to replace before the 8th year - there was and still is so much time in bed, but I have let it go, I must! Let me scream and scream and scream, I know My Great Spirit! I know who my God is.

My hearing in my Right Ear has been absolutely ridiculous, I mean, my dear wife's right there! Three feet from me!! What the shit is this! We had a chat this evening because I was getting old stuff in my one ear and my one heart. I am sweating and have a nice sized knot of vomit right below my Adams apple. I fight it - the sweat! The Nausea and vomiting in-your-mouth or have it travel as a Motion Sickness thing. Oh hell yes, I've had projectile vomit happen. I wish there catch it before or way to stop it. The time has come for me to go rest, so I will. I am going to publish this tonight without censor.

As of this evening/Morning, we have had 35,231 visitors over the years. There has been 1322 Posts. My Dearest Friends, thank you for dropping by every one and again. My plan is to continue this Blog and become more active. I miss being here. Peace!

My Kin, Go On! Sweet dreams!!

Wednesday, September 10, 2014

It Is "Share And Tell It Time!!" An Opening...

Kin Folk and Kindred One's,

And then, I thought, well hell, I haven't had a nice open and close. Show and Tell, that type of stuff, yes! Tonight's a good night for opening up the shuttered brains and do some Fall tidy-it-up. Same as it has been for a few weeks, considering change and working on the preparation of work that come with change.

I will conduct a "Share and Tell It!". An opening of my Spirit's, a direct confessional to My Great Spirit. Oh, sure, I was a right down good Southern Mixed Blood in the South Eastern U.S.A.
Shit yes Man, life is different here, listen to the usually complaining Yankee's and Canadians and you would think the state is one long Key Largo. But it isn't and too sadly just not yet.

This form of quick/rapid stress relief is something like a word association scene but not really. I think so, just don't know about others - if most do, I'm cool on this. Right. Right here, I just go with the flow of my thoughts and mind set. I do not censor what I tip-tap, so I'm not ready to apologize for using profanity or some dumb shit like that. Okay? Alright then...

#1. Alright then! I've got to let it go! Open this up and let it loose. Verbal Vomit!

#2. I dislike that "spell check" still insists I am writing my name incorrectly.

#3. I am an American, a North American. A Mixed Blood.

#4. Maybe that's why the computer insists I misspell my own damned name.

#5. The pain levels in my body are beginning to become affected by the medicine I eat.

#6, Or the hundreds and hundreds and thousands of injections.

#7. I don't shitting enjoy getting all of these thousands of injections. Yes, thousands!

#8. On my face, in my scalp, on my big bobble head, my neck. shoulders and my back. On my breasts, my man chest - really - but, these were my man boobs. Seen.

#9. An occasional shot right back there on/in the ole junk-in-my-trunk. I've Got Butt.

#10. My hope's ride high on gaining ground on the Neurological Pains! I feel something!

#11. Look, I've decided something in life and that is, I've got to cut self critical shit out!

#12. Yes, this is something that I've always done in my life. I've played Wild Cat. You see?

#13. There is something else that I have let wrap around my skull like a fine silk scarf.

#14. Meniere's Disease, has moved in to stay, there's not a damned thing I can do about this.

#15. So I figure, I better get to it with my life. It doesn't matter what I begin to do. I must do begin. Write down minor lists of tasks or 'open the office' like I call it and bust business calls.
#16. And I swear, I want to live! I want a life! I have a Life! It is now for me to get busy.

#17. Time to get busy again! And if I fall, I'll shake it off and keep on keeping on.

#18. For Pete's Sake! I'm still so damned young! And handsome too! Six Foot Two!

#19. Listen, let me share this, crying because I miss my mama, this is not depression.

#20. Hell yeah, I'll mention my Mama again! Lord, the lessons I learned still come to pass.

#21. Mom, I miss you, Dave and Dad a whole damned mess full. You still live in my heart.

#22. I think about a Kid I knew in school, and hope he's doing well, he was always so cool.

#23. I love and respect my Wife! I've always prayed, contemplated, and wished the best for us. Once when there was Four of us. My Beautiful Daughters! Especially now that Our future requires immediate attention. Oddly, there's nothing in this owner's manual about what to do when this happens. Bastards!  My Spirit's move on, like my physical form and we move on.

#24. But first, Sir, please just keep on doing what you've been doing. Moving about.

#25. I do not have any idea why I thought that you would ever apologize. I simply don't.

Well!@! Yes! It's a roller coaster and I am sweating and gagging. Please, understand this is therapeutic to I and I. It is a form of mental exercise. Brain food. I enjoyed this dash and I surly hope you, my Guests enjoyed this also. 

I am in silence for the souls being dispatched tonight, especially come morning and throughout the day. Americans here now, might consider reading a paper every once in a while. God Bless America! God Bless Our Earth Mother! Love Live The Queen!

Mario's Path, Mario here ...

Thursday, September 4, 2014

Note: A Meniere's Disease Update, Neurological Surgery Update, Time For A Change


Hello Kindred,

I wish to welcome one and all back to My Path, I am a blessed one to cross yours once again. There is news to share so I'll move along and chit chat a bit. I am aware I have been inconsistent with respect to my means of contact or connecting. For me and from me, I needed to get some physical, emotional and mental balance rolling, I mean, out of circles for a few months, maybe years even and I had assumed a somewhat reclusive life style. Leaving only times open for doctor appointments. Which has been something, I sincerely believe has been worked on. With my Spirit's and I, we have fought hard and long battles. I get my ass beat by my innards - I licked and began to shake it off pretty swell lately. Still. I did and do my best to work on and whip this crazy mix of disease! I swear, I wish to sweep my diseases and thoughts, out and away from my circles and I. Our circles gather so much, it's important to keep in mind the powerful energy from throughout our little blue planet. Perhaps there is not many who have Meniere's Disease, or have even heard of it. But, my Brother's and Sister's have their shit to deal with. I understand and believe this with all my heart.

I reckon, it is proper I admit I have been too inconsistent with my communiques. Yes, I'm a Man, I know Sir., and Ma'am, and I always consider what is it with me and getting Women's Disorders, and Disease? Eating Disorder's, self-harm, multi personality disorder, post traumatic stress disorder, depression, and then, all-that-fucked-up-self-talk. My Kind One's, I've been a fellow who has had surgical  procedures lately. In my heart, something is taking place and I've got to get up and out of my self and move my stuff along, en'it? I mean, I got junk back there at 54! Oh yes, I do! Anyway, I've been down for so long and looking at the wide picture of the past few years - I have lived in pains that ranged from high seven's up to and exceed 8's to nines. Please, I dare not go back to see how many attacks I've had, or count how many injections of what-ever. Or that I was blessed by, my God, have the Blessed Doctor K., work on and inject into my spine medications that I can't pronounce. This one surgery I had last Friday, was in hospital and was performed in a surgical suite from another world kind of scene and medicine. Yes, oddness went on in that surgical suite. I mean, you all, I was in sedation! You see, AND communicated with my super doctor! Oh yes, and communicate however I did to let him know when he was hurting me. He apologized and we moved along with me in a world that I was not familiar with and "so" out for over three hours and I very really believed I was out ten minutes. Oh, so very true.

Great Good, my Young God Blessed young Brothers has healing hands! My Great Spirit, permits me to share at this moment, my Dr. K., has hit on to something! My pain level on my right side has been low fours, up low fives. Om. For now, this is my Life. Today was a great to die! But it was also one extraordinary day to be alive. Goodness gracious great balls on fire!

There has been a change. Something new heads this a ways.

Please, Kindred Ones! My, my! I can not express what it is I have felt on the right side of my body and arm! The damned hell of a daily pain that would last twenty four plus hours! An everyday process of life besides Meniere's and an asthma that chokes me sometimes. Sometimes I choke on water or my own saliva. But I share this, right now, and no damned lie! That daily pain average I spoke of, the one I have lived with and in, a life I have lived over the immediate couple of years when my damned pain were damned sevens and 8's too long! Sometimes TOUCHING TEN'S! My Lord! This pain that I continue to feel and deal with 24 hours a day, is adjusting! I believe in my heart of all hearts that we're on to something here! All of this which is being coordinated and effected by the medicinal regimen my Professor of Neurology, my Dr. of Neurology Head Pain, and Nuerological Pain, who is also known as, Dr. She-With-Many-Names.

That last surgery on Friday past, has created a huge believer in me working at this shit! I mean to say, I have had been in pain for so damned long! Dr. She-With-Many-Names, trusted my Dr. K., with my life. I have always trusted him, his every word, and my Great Spirit, has placed us together for a reason. And oh wow, yes! I am so happy!

I know and am aware there's still more work to do. My left neck, shoulder, arms and innards have been so bad with pain, at this time, my average is between high fives to high sixes and occasionally a low seven. But! There's something going on, so I take my medicine as ordered, and I follow my every doctors directions. Always.

My damned Meniere's has me sweating and carrying on like I'm doing something athletic. Child please, but I share, I love and miss the way I feel here sweating where I sit. Here where I am at and on this seat I sit in, chatting and trying to catch up a bit with you my reader's and Guests. By the way, my facial pains continue, and I continue to have facial spasms, facial pains and pains in my scalp. Those damned sudden attacks of  spasm like - cluster pains are back and are moving in again, looks like back into my scalp. Well hell, It's my health and most of all, this is my life. No friends, this is not just another manila folder with my patient medical record number on it. Or a current list of all of the damned medication I consume daily. A multi-vitamin too.

Please, please, let me offer a humble thank you to my Professor at Tampa General Hospital, My wonderful Dr. K., the one who touched my Cervical Spine! All of my Team Mates at the Professional Clinics I mentioned earlier, and that Group of Seven who were with me in surgery! I can't believe five days post surgery.

And I sit here with a smile on my face.

NOTE: As a Citizen of Mother Earth, as a Mixed Breed Individual, born here in North America and the United States of America condemn the crimes against Humanity committed by terrorist in the Middle East. I pray and have wept for the family's who have lost the lives of their children and family members because we are Christian. Where is the Pope? Where is the Holy Military Elite? The Army of The Pope? Where in the hell are our Governments around our globe? All of them permitting an internationally televised Genocide, all right before our very faces. Where is My President Obama? I am not understanding how we left fellow Americans in the hands of the enemy! Mr. President Obama, please insure justice takes place. NOW! We require some stompin', shock, and awe over there!! Remind these Dogs and Pigs, it is what it is. WAR! I thank Cairo and the U.A.E. for taking action. I thank the PM of the UK for having the balls to at least make passionate talk. President Putin, Make haste with your business, the majority of your people's wish to return, simply let it be so. No more blood shed. Please Sir, consider my plea. There is just too much bloodshed being spelt all about our beautiful Home, Mother Earth.

God Bless America! God Bless Russia! God Bless Egypt! Allah! Bless The U.A.E.! Keep your citizens safe and have military on the ready. Our Citizens from harm. As Fellow Humans, I love my Brothers and Sisters of Earth Mother!

President Obama! President Obama! Go ahead! Open it up! Great Spirit, has said, It's time to remind the enemy that they have cock roach status here. Killing Fellow Humans is no form of Foreign League Department. Seen.

Tuesday, August 26, 2014

Starbucks Coffee Is STILL My Starbucks, You Know?

I believe it be true, that once a Team Mate has fallen, and the Team Mate is nothing but a memory...

...the Partner moves on out into a wonderful world in due time, the partner and the stores split, oh God, though it hurts my Heart! I am a Disabled one, who was blessed to have had such awesome and legendary service from our partners and team mates outside of the Box. Things move on. Sometimes I'll cry when I catch that first scent of "AAAHHhhh!!"...

I Loved My Starbucks as a Partner, I still remember my number too. I still remember certain Teams and Certain Partners that I still carry in my heart of hearts. I can say I love you now!

Very few places on Earth Mother, is it where the legendary service is provided without fail at the West Shore Plaza Store, The Magical Team over at our Drive-Thru, which stands directly North of Fidelity Financials. You can't miss it. If you drive the speed limit. Oh yeah, from what I hear there is some Legendary Wonderfulness happening over at the store over yonder at the split of Old Tampa Road. Oh, YES!! ALL Awesome stores and absolutely Legendary Partners!!

Well my friends and once fellow partners, Ohhhhhhh My God, the memories, the Legendary Service that was so text book that no matter what time of day or night, my Grande Triple Legendary Favorites, was the same latte`- time and time again. AT any of these Stores!!

My Ex-Fellow Partners, yes, I remember. I still love you all and I miss ya'll crazy!! Thanks for the memories Starbucks!

Love and Peace, Mario

Ya-Hey!!