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Tuesday, June 17, 2014

Wow! I Like The Sound Of That, Meniere's Talk

Kindred One's,

Seems as if It was just a day or two passed, I responded to three different inquiry's.

I never mention names, because I can't. I believe in strict confidentiality. For the record, your information is private. Private even from me. Unless you establish contact, at which time I make myself free for a conversation and connection.

We just had a reader, probably within the half hour inquire about "Meniere's Talk". Wow!

Goodness Gracious! I love the whole sound of those two words. The energy that comes from such talk. Oh, my dearest Reader, please let me thank you from my heart to yours. Even if there is already an established group, or individual with such terminology, I will consider alternatives that will point out that we are here and we are free to have connection, contact, and talk here with our fellow Meniere's Disease Survivors.

Sadly, there are many of us that have become engulfed by the horrible storm and horror's. I fell. We all fall. The knowing of helplessness is a reality, and our Brothers and Sisters become surrounded by the disease and their emotional enemy's, and if our fellow survivors do not fight the battle, they too will become Home Bound. Exiled. Recluse. Yeah sure, I keep it real with my immediate Clan and attempt to communicate here on blog, but Sis, Brother, this is for real. For damned real.

There are many of us who have become Warriors for the cause. I ask you please, find a Doctor with a clinic prepared to assist you with the War you and your Doctor are about to embark. There are no short cuts with Meniere's Disease. Yes, the pain. My beautiful left face drooped down twice post operations. Both times recovering fairly well, with the exception of my dear left eye. It just doesn't cry like it used to. I miss that. I miss not being able to hear the rain outside. I hate it that I will never be able to sample Dr. Dre's head set that blows folks brains into some Funky stuff. How does a person, LIKE ME, who is single side Deaf, get to groove to Dr. Dre's fabulous Head Sets?! IDK!

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