Dearest Kin Folk and Kindred Ones,
Tonight, I just want to say real quick like, that sometimes I believe it best that I not say too much anymore about my medical treatment. Whether it be even the odds and ends of today's ill state of affairs, too many folks are quick on their draw and same folks have lost about lost what the true definition of true etiquette is. Yes, friends, I say some shitty stuff from time-to-time, but that must be some damned shitty stuff for me to be going through. There are times when I speculate I might should reconsider my direction with this very simple means of communicating with others about Meniere's Disease, and decided a couple of years ago that I would open up my Path to include who I am, where I am, where I've been, seen, and I share something as helpful of I can with love. I simply wish to share what is going on with my family and friends and what this disease and pain has done to me. And them. In some 'Groups', I have read too many were uncomfortable. There seems to be a society where there is a tense contest to see who can up one on another with a quickness. Let me share this real quickly. Seen. I am not in some silly ass contest to see who has a worst case scenario illness or case of Meniere's, or any of the other invisible disease, all are welcomed to my Post's and ALL are welcomed to this silly little blog called, Meniere's Disease, Mario's Path. There's no judges here and I sure enough do not wish to be judged, or made fun of, or any of that, that happens and is real. For shits sake, really, and there's so many Folks out here who pray for their worse case scenario. I can't understand this and that's not okay in my heart and Spirits. No, not okay, because, my brothers and sisters, I have seen what that worst case scenario looks like! I know how it affects the family to the core of Kinship. Please you all, take it all the contests with you. I don't require any more negativity on or near my Path, things have seemed to calm and settle a moment over this past week of much sleep. Kind One's, I am afraid I am just about threw with combating this damned Meniere's Disease and it's symptoms and the damned pains that have come from the Meniere's and Neurology.
NOTE: People are not just up and given the diagnosis "Meniere's Disease". As uncommon as it is, there seems to be a whole bunch of folks out there kicking it up about having "Meniere's Disease". Them and their text book talk about what Meniere's Disease is, very from the text, of a text book or and hit Meniere's Disease on Google and I promise that you'll come up with a whole heaping helping of bits and pieces about this invisible, life altering disease. One such disease without a cure, and a disease, my Kin Folk, that is determined and diagnosed scientifically addressed.
I am threw with ALL of this sickness. I am finished with being sick and seemingly unheard of. My body is in a dreadful damned state of pain every day of my life. Now, more than ever, a pain that lives with me twenty four hours a day. I don't understand why it is that I AM being kept from treatments, NOW, that could help this fellow Human out immediately?! Why must I wait for such a long period of time? I am confused in some societal ways and the negative thoughts that come from these observations and perpetuation. I, my Family and dearest of friends, simply wish to get all better. Please. By the way, there's really huge parts of my mind and heart where much debating take place, considering, over and over, just what it is I will be doing over the course of the next several weeks. The calendar of appointments weeks out are approaching a necessary hold on future appointments. My Mind is just as important in my Better Health, Mind and Body, that I figure this is but the tip of the ice berg for me. Or the top of it, which ever you would like to call this period approaching, some huge medicinal changes. These that I prepare to ram me full on, joining in with all of the illnesses that accompany me.
What am I to do or say anymore my friends? There's nothing for me to do but move along and keep this journey productive and encouraging as possible for me. There will be no more negative vibrations going on in my treatments anymore. They simply, fuck the process up, and no, I just don't want to deal with much more of those in my medical treatments. We as a Team will continue to work as fast and at a full speed ahead for my Team and I. And look, for me the fighting against the sleep and slumber hasn't been worth a damn lately because the sleep continues. I sleep as a way of life right now and I even have a diagnosis for it too, it's called Hyper-Somnia.
Kindred, all of you who are wishing to connect with some one who has Meniere's Disease, I welcome you. I have loved so many of my Guests and Readers. I reckon many are a look and see, but that's cool too. I simply wish to be out here. Out here and along with other of my life's Odds and Ends. I have been working with all of my doctors and my specialist for several years. Yes, I have my own ideas of what is going on within my foggy state of being, this desire to tip tap key-by-key to keep n touch with my dear ones.
This sleep and deep has had me by my Afro, has always been more of a Meniere's thing. It is a post attack or consequence or symptom, which ever you would like to call it, but yes, Meniere's attacks go hand and hand with me and my life.
Life.
I love to live!
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