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Thursday, February 13, 2014

Meniere's Disease Special Forces, A Surprise Attack On My Right HOH Ear

Relations,

I wish to report on a procedure I had done on this past Tuesday, the 11 day of February 2014. My Doctor He-Who-Touched-My-Brain and I, had an appointment scheduled for Audiology Tests and examinations at 1300. There was a small unremarkable increase in word recognition noticed with this series of tests and unfortunately I am aware that these tests come back wacky and nonsensical from time to time. At any given time, my hearing in my right ear is deaf, near deaf or poor hearing. Which in my layman ways is to understand that this is the way it's going to be the rest of my life. Or, until my HOH, Hard of Hearing becomes totally helpless, in which case, then, is when my Good Doctor has assured me that I will not go deaf, but It will be then that I qualify for the Cochlear Implant on my right side of my head and skull. At present, I use a hearing Aid, an awesome one indeed, but I have learned that hearing aids are quite simply amplifiers for the ear hole. It picks up sound, noise and word and makes it louder. I am Deaf with a BAHA, Bone Anchored Hearing Aid, on the left side of my skull and scalp. Without my implant and processor in place, I am a Deaf person. I have learned by listening to doctors and taking special care to my doctor, that this form of Meniere's Disease is very rare form. Meniere's Disease, usually affects one ear, I have been blessed to have had both of my ears invaded by this disgusting life altering disease. It is to my understanding that there are only 7,000 or so of us on this planet with the BAHA, and I feel blessed and privileged to have one implanted to the side of my skull and scalp.

This Special Forces, Surprise Attack, I have spoken of was a plan for a procedure where and when my doctor inserted a needle and syringe with a powerful form of steroid deep into the center of my ear. When Doctor slowly injected the cool substance into every nook and cranny of the inner most part of my ear, I wanted to cuss, but did not. The medicine in turn passed through my sinus and into my mouth which created a bitter and quite nasty taste. The pain was powerful, yes, but no where as powerful or life altering as the gentamaycin  antibiotic injection that comes in a series of seven injections that are injected into the affected ear. gentamaycin is a very toxic medication when it comes to one's ear and is totally out of the question in the case of my right ear, due to the possibility of it destroying whatever hearing I have left in my right ear hole to the brain. I say, I so surely do wish to hold on to this hearing as long as I might, so then, Doctor D., and I are on same page at 100%. This slow injection of medicine lasted for several minutes and created a dash of a brief Meniere's Attack, with the ceiling spinning madly and the walls breathing in and out. My doctor remained with me, spoke with me and assured me that these sensations would be temporary and not to worry. As he ordered, yes these symptoms were very temporary.

This action was required due to very new symptoms in my right ear, cruel and bitter pains deep in my right ear and head, and the surrounding area of my right ear, that were and have been mirrored symptoms of those I had in my left ear when all of this first started a few years past. As of today, the 13th of February, I have yet to sense any change from this injection of steroid, but doctor informed me of the pros and cons, and that it may take a brief spell before any recognizable change could be noticed. Or not. For me, all of this was well worth the go ahead. So, once again, my dearest Doctor He-Who-Touched-My-Brain, went to bat for me. It was not long ago we agreed that we had hit solid cement ceiling with this disease and what it is doing to my ear on a medicinal point of view, but doctor was prepared to conduct this one more study. For me, whenever any of my doctors wish to conduct a series of tests, exams, or procedures, I am all systems go. What this disease did and has done to my once beautiful life and hearing left ear, has been tough and so damned depressing for me. Well then, now that I look at this whole process differently, well, yes, I can see my left ear is still just as beautiful as it ever was, and just a couple of inches or so away from my ear is the site of my BAHA implant, and oh what a sight it is.

I wish to thank my doctor for continuing to attack this disease at full speed ahead. I am very well aware that we are approaching an end to the extra applied use of medicine in this matter and that I will in fact have to make due with the medications I am presently taking. While also in the back of my mind prepare for the inevitability of a Cochlear Implant. I believe today, I have a difference in my appreciation for all my doctor has done for me. Assisting me with the fighting of this disgusting invisible disease.

Should you ever come across this Doc. D., and I know you do check from time to time, know that I appreciate you, I am blessed to have you in my life and I thank God for you and your most blessed hands and mind. Also for that extraordinary staff in your clinic. How Blessed I am.

My friends, I will surely keep all up to date on this Meniere's Disease and will be bring you up to date on what is going on with the Neurological Pain issues that have plagued me for years and years. Speaking of which, there has been some good work coming from this. It has taken so much time. It has taken so much pain and medications, and really Folks, I am plain old tired of being sick and tired. I wish all relations true love and peace. I pray you be well and for those of you in this serious of Winter, please be safe, keep warm and keep dry.

With love, respect and understanding for all who combat Meniere's Disease, I wish you God Speed.

2 comments:

  1. Mario - I too have had Gentamiacin injections in my right side and thank God they eliminated my symptoms over about 6 or 7 injections without harming and actually improving slightly my hearing - I feel blessed at the result of the injections -

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  2. tunafish, thank you for sharing. I am so very pleased and happy that the Gentamicin worked! Indeed, that is worthy of a wow! You had approached the 'no more zone' of those injection too, I am so happy for you, and congrats on your hearing too! So cool! Thanks for the reading and thanks for the note. Peace, Mario

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